When Buster was first diagnosed with CP I scoured websites and Facebook groups, looking for support. I didn't know what I didn't know,...

I both love and loathe this time of year, with all of the recaps from social media influencers, bloggers, authors, celebrities and...

Before starting this review, please note that I am not a medical professional and the following information is anecdotal. Please check...

I was chatting with a friend the other day, who also has a child with medical needs, and it occurred to me that I don't think she knows...

Happy 2022! I've taken a break from the blog for a little bit, to spend time with my family over Christmas, but I've missed writing. I...

I find myself looking at pictures from a few years ago. The ones that show up on Facebook or on my phone as treasured memories. Most of...

After a long Day 1, and crashing back at our hotel, we awoke on Day 2 ready to do something fun in the morning. We still had the upcoming...

I'm exhausted. Physically. Emotionally. Mentally. We are on Day 2 in Boston, and we are finally just hanging out in the hotel room. It...

Tomorrow morning we travel to Boston for Buster's annual MRI, as a follow up to his 2018 brain surgery. Although an MRI is nothing...

This time of year I get pretty anxious. Not only is the Holiday Season upon us, but it's also the anniversary of Buster's strokes, his...

Shoes. I love them. I could obsess about the different shoes I have on my wish list and build outfits around a fabulous pair of statement...

Sometimes I feel like an impostor. My son is still here, alive and thriving, and yet there are moments, days, weeks, where the grief...

I was never one to speak up. About anything. I always joked that I could never be involved with a protest because I didn't feel...

On Christmas Day, 2015, my son suffered a stroke. He was only nine months old. I had no idea that children could have strokes, and I...

As a parent of a child with a rare disease, I've found that although my child may have a diagnosis that few others share, I have much in...